As part of my therapy and to
document my journey to recovery, I have been writing in a journal most days. I
have always liked the idea of keeping a written journal but it never goes too
far beyond that. It always begins with a fluid expression of thoughts and
quickly devolves into the chaos of near illegible chicken scratches. My hand
gets tired and can't keep up with my brain and I finally decide to call it.
However, I quickly realized
that written communication will be an important part of regaining the full use
of my right arm and hand as well as rebuilding my cognitive processes.
The first 48-72 hours after my
stroke, while I was still recovering in the hospital, I was presented with a
piece of paper and a pen to see if I would be able to make any marks with my
right hand. At the time, I was able to make a writing motion but wasn't able to
put enough pressure down to make any marks. The next day, I was able to write
my initials, "JSB" legibly, but wasn't able to cognitively form my
first name, "James" and so wasn't able to write it.
Since then, I have somewhat
steadily improved, depending on my level of brain fog and fatigue. If I'm
really tired or have exerted myself then I will quickly lose my thought
process, sentence structure, and begin to leave words and letters out making it
super difficult to stay mentally focused.
I've decided to share a short
example from my written journal below, from July, 2nd. This is the beginning of
an entry and there are some clear signs of scribbled and left out words,
misspellings and instances of writing one letter in place of another. The
following pages (not shown) continue with this increasing pattern until my concentration almost completely breaks down.
I know that there has been drastic improvement in my handwriting both in my endurance and cognition but it feels so very tedious.
It's still difficult for me to
wrap my "brain" around how I can fully receive and comprehend complex
information and thoughts and yet, I struggle to communicate those thoughts back
to others both in written and verbal form. All the while, I know that I'm incredibly
lucky in that there are many who have suffered strokes who don't even have the
understanding piece and can't even form the thoughts they are so desperate to
share.
All I can do is continue the challenging
work each and every day and through that challenging work, continue to sharpen
my abilities one step at a time.
Peace and Love to you my Fellow Deep Diggers!
I'm praying for you, JJSB! Psalm 73:26,"My flesh and my heart may fail BUT GOD is the strength of my heart and my portion forever "
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